Sjögren's OMERACT Survey 1

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fQhQcuwzYG8Nv9xuk3awfJ6faQRW82bHKWNFVFVHiegsCxW7B7uYSrpCH9GeanypGxgKZLrwav8ATY7iU3CWAPZokvybLVqCGwuWBSjdLIbSWnbPD2RNuZiv

Welcome

You are invited to take part in a research study. Before deciding whether to participate, please review the consent information on the following page.

The consent form will explain the purpose of the study, what participation involves, any potential risks or benefits, and how your information will be protected.

If you choose to participate, you will be asked to provide your email address and indicate your agreement at the end of the consent form. Your email address and agreement will serve as your electronic signature, and you will receive a copy of the consent form for your records.

Participation in this study is voluntary. You may choose not to participate or stop at any time by closing the survey. Your decision will not affect any care or services you receive.

Please enter your email address (used only for follow-up or reminders):

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Please confirm your email address:

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Emails do not match. Please correct before continuing.

Are you a member of OMERACT?

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Yes

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If you are a member of OMERACT, please select the collaborator group that best represents your affiliation or role in relation to your involvement with OMERACT.

* A foundational principle of OMERACT is bringing together multiple international collaborators in research. OMERACT classifies collaborator groups according to the 11 Ps outlined in the document here.

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Patient research partners, patients/consumers, caregivers, and patient groups

Payers and purchasers of health services

Payers/funders of research

Policymakers

Principal investigators

Producers and commissioners of guidelines

Product makers

Program managers

Providers

Public

Publishers

Other

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What is your other collaborator group?

Age

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18-29

30-39

40-49

50-59

60-69

70-79

80 and older

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Which term(s) best describe your current gender? [Select the option(s) that apply to you.]

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Agender

Bigender/Multigender

Gender-fluid

Gender Queer

Man

Nonbinary

Questioning

Transgender

Two-Spirit

Woman

I prefer not to answer

Other: please specify

What is your gender?

Country

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What other country? (Ex. South Korea)

We understand that a person's ethnicity or cultural heritage is not necessarily indicative of the race with which they identify. For many, each is a distinct part of a person's identity. Please select any of the options below that best describe you.

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East Asian (e.g., Chinese, Korean, Japanese, etc.)

South Asian (e.g., East Indian, Pakistani, Sri Lankan, etc.)

Southeast Asian (e.g., Filipino, Vietnamese, Cambodian, etc.)

Black African (e.g., Nigerian, Ethiopian, Congolese, etc.)

Black Caribbean (e.g., Jamaican, Haitian, Trinidadian/Tobagonian, etc.)

First Nations

Inuk (Inuit)

Métis

Indigenous (North American)

Latin American (e.g., Colombian, Salvadoran, Peruvian, Mexican, Chilean etc.)

Middle Eastern, West and Central Asian (e.g., Iranian, Lebanese, Afghan, etc.)

North African (e.g. Egyptian, Moroccan, Algerian, etc.)

Pacific Islander (e.g., Native Hawaiian, Samoan, Tahitian, Polynesian, etc.)

South Pacific (e.g., Australian, New Zealanders, etc.)

White (e.g., English, French, Italian, Ukrainian, Polish, Swedish, etc.)

Multiracial

Prefer not to say

Other

What language(s) do you speak most often at home? (Select all that apply)

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Arabic

Bengali

Chinese

English

French

Hindi

Japanese

Punjabi

Russian

Spanish

Urdu

I prefer not to answer

Other

What other language do you speak?

Please tell us why you are interested in participating in this delphi:

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What type of healthcare provider?

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Physician

Dentist

Optometrist

Physical Therapist

Other

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What type of healthcare provider?

What type of physician?

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Rheumatologist

Ophthalmologist

Neurologist

Otolaryngology

Oral Medicine

Internal Medicine

Other

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What type of physician?

How much of your time, if any, do you spend in research?

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How long have you been caring for or researching Sjögren's disease in years? (Ex. 5)

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If you have Sjögren's disease, please estimate how long since you were diagnosed:

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Were you diagnosed with Sjögren's Disease based on positive anti-Ro/SSA antibodies or a positive lip biopsy?

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Yes

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I agree to participate in, and receive email notifications regarding this study

You have selected an option that triggers this survey to end right now.

To save your responses and end the survey, click the 'End Survey' button below. If you have selected the wrong option by accident and/or wish to return to the survey, click the 'Return and Edit Response' button.